Create a Plan to deal with your MS

Happy Wednesday,

You need to take control of your MS.  This involves YOU creating a plan which you have to communicate to your family, healthcare team, close friends & anyone else close to you.  Yes MS has unbelievable challenges, but MS means you were Made Strong so YOU need to create the plan that makes your life the best it can be.

Enjoy Your Day,

Ray

Avoid the Heat!!!

Happy Wednesday,

I am up early to get everything done by 1100 A.M. so that I’m out of the heat.  As part of my Overcoming MS program, I’m supposed to spend 30 minutes/day in the sun to get vitamin D.  Well not until this heat wave is over.

Enjoy Your Day,

Ray

BikeMS in Windsor, CT

Happy Monday – 25 miles completed on a Ti-Trike recumbent bike.

Really hurting today, but so worth it!  Had the time of my life.  I felt so alive!  Go to www.titrikes.com.  They can adapt the trike so that ANYONE can ride!

Enjoy your day,

Ray

 

The four step process of accepting diagnosis with MS

Happy Mother’s Day & Happy Sunday,

I am not a health care or mental health professional, but speaking to 1000’s of people with MS, there seems to be a common process that most people go through once they are diagnosed.

  1. Denial– The doctor’s are wrong, I don’t have MS.
  2. Anger-Why me, what did I do wrong to get this horrible health condition.
  3. Depression-I can’t do what I once did, my life is over.
  4. Acceptance-OK, I have MS.  How do I slow the progression of MS down so I can live life to the fullest.

Everyone takes different lengths of time getting to Acceptance.  Once you get there, you can figure out what is best for you.

Yes you need your health care team & support system, but YOU have to figure things out yourself!

Enjoy the Day,

Ray

Your Health with MS is a Lifestyle

Happy Monday,

The consensus seems to be that 4 things are needed to help you overcome the symptoms of MS:

  1. Healthy Diet-There are no official MS diets, but a diet low in salt, fats, carbs & sugar is most often recommended.  I have also illiminated dairy 100%, which is working for me.
  2. Exercise-I workout 6 days/week.  Weight machines, treadmill, recumbent bike, yoga & pool.
  3. Positive mindset-Make the most of every day! This may include finding a passion, meditating, or other things you enjoy & do to de-stress.
  4. Take a Desease Modifying Treatment-You need to work with youe Healthcare Team to find what works for you! Enjoy the Day, Ray

MS & State of Mind

Every day I encounter people with MS that feel down, depressed or lonely.  I have been lucky enough to become friends with some of the most incredible people who I never would have met had it not been for MS.  Yes MS is horrible, but I have gained the mindset to embrace the good involved with MS.  When we started on this event calendar 2 1/2 years ago, there were an average of 100 events weekly across the US.  There are now an average of 175 events weekly.

My advice to everyone is: Go to an MS educational dinner or a local support group!  The interaction & friendships will enrich your life.

Enjoy the day,

Ray

Don’t let the insurance companies dictate your MS treatment

You, with the help of your  MS health care team should decide what DMT is right for you.  The insurance compaies care about saving money, not what is right for you.  No one knows your body better than you & YOU should decide if an injection, infusion or pill works best for YOU!  If your insurance company (Medicare included)  denys you coverage for the DMT or other drug that YOU have chosen, call the drug company for assistance.

Enjoy the Day,

Ray