Insist on MRIs of your spine!

Happy Wednesday,

When I got my first MRI of my brain in 2008, it showed no lesions so the questioned MS.  The MS activity was in my spine!

I was speaking at a MS event last night and only a couple of people had ever had an MRI of their spine.  This is ludicrous because your spine is part of your nervous system.  I have also learned that men with MS tend to have more lesions in their spine.  Next time you get your MRI, have the Dr. order one of your cervical & thoracic spine as well!

Enjoy your day,

Ray

MS doesn’t have to be so isolating!

Happy Tuesday,

I recently spent a day with friends that moved to Atlanta, Ga over 25 years ago.  We hooked up on Facebook.  They were up here visiting my friend Chips Family.  It was like we remained in contact.  They learned that I had MS & were more concerned about me going sailing on Long Island Sound than me.  What they realized was that I’m still the same person & our friendship resumed.

You are the same person you always were, so MS has made you adjust, OK, so what.  Reach out to friends & family and let them know that even though you may have limitations, you are still you.

Enjoy your day,

Ray

Going ALL IN!

Happy Sunday,

I have be watching Teri Jaklin’s videos on managing your MS.  Teri is a Naturopathic & Functional Medicine Doctor who has MS.  What I have learned most is that doing a little bit, doing part way or cutting down is not enough.  I eliminated dairy 100% one year ago.  Best thing I ever did for my MS.  Teri also recommends eliminating gluten & sugar as well.  December 1, I eliminate gluten 100%.  January 1, I eliminate sugar 100% .  My wife asked how will I live?  I responded probably better than ever!  This won’t be easy, but I’ll keep you updated.

Enjoy your day,

Ray

People with MS going on Ocrevus

Happy Wednesday,

Speaking with 7 people who have gone on the new DMT, they’re are all happy.  With the exception of 1, all are saying they feel better about 30 days after the second infusion.  Going to several presentations on Ocrevus, I learned that the drug targets your B cells instead of your T cells & it is pronounced the same as the vegetable okra.

Enjoy your day,

Ray

Exercise with MS

Happy Wednesday,

The entire MS community is promoting the importance of regular exercise to help your MS.  This is physical, mental & social.

I have given talks attended by people who are in chairs or walkers.  They claim they cannot exercise until I break out a can of soup & necktie.  They can raise their arms & do curls with the soup while watching TV.

The necktie can be used to stretch the legs even if they cant lift their legs, they can use their arms to lift their legs.  The key is: Move your muscles!  The other thing is I usually have people stand up & stretch their arms.  I do these things throughout the day.  You must never over do it or over exert yourself or cause pain.

Enjoy your day,

Ray

Dealing with stress while the world goes crazy

Happy Monday,

With devistating hurricanes, terrorist bombings, riots because of court rulings, it gets more & more difficult to not be stressed.

Having MS means that we already have enough stress in our lives so we can’t avoid everything going on, but YOU need to worry about YOU!

I get just enough news to know what’s going on, then I avoid the news.  The news is so negative.  How can I remain positive if I am surrounded by negative?

Enjoy your day,

Ray

SOMEONE ALWAYS HAS IT WORSE THAN ME

Happy Friday,

With all these natural disasters, I am reminded that someone always has MS worse than me.  That helps me keep a positive attitude.

No matter how bad your situation is, someone ALWAYS has a worse situation.

Be safe & Enjoy your day,

Ray

Overcoming MS requires a lifestyle change

Happy Thursday,

What I have figured out is that to put my MS at bay requires a whole bunch of small things that combined make me feel infinately better.  This involves Mindset which includes daily meditation, stress reduction & having a focus in life.  Exercise which includes the pool, weight machines & stretching. And Diet which includes no dairy, limited sugar & carbs &  lots of fruits & vegetables.

Enjoy your day,

Ray

Does medical marijuana help relieve MS symptoms?

Happy Sunday,

Yes, it helps me with foot pain, leg & body spacisity & sleep.  Medical grade is not the same as off the street.  In CT the owners of desensaries must be licienced pharmacists.  You meet with the pharmacist & discuss what your symptoms are & the pharmacist makes suggestions.  You can smoke, vape, get oils, edibles & topicals.  CBD (pain relief) & THC (euphoria feeling) conent is what matters.  Smoking is immediate, other methods take a little while to kick in.

I take pure CBD oil in the morning (legal in all 50 states) I’m never high during the day or when driving & smoke a 1:1 blend before bed.  This is what works for me.  Everyone is different so you must experiment.

Enjoy your day,

Ray

Don’t isolate yourself!

Happy Tuesday,

MS can be very lonely.  Once you experience symptoms, you may lose friends for various reasons. My solution was to make new friends in the MS community.  What I found is that my new circle of friends are the niciest, friendliest group of people who get what we go through.  I woke up at 2 A.M. because I had medical MJ before 9 P.M. so I went on FB & was contacted by a friend who says their are no support groups near her. Unfortunately she is right.  Even though he are 100’s of support groups in the US, we need more.  There are many MS support groups on line and 100’s of MS dinners every week.  I make it a point to meet as many fellow MSers as possible.  MS events  & online groups are great ways to do this.

Jen messaging me at 2 A.M. from Wisconsin made my night/day.  Thanks Jen.

Enjoy your day,

Ray