Well, Its about time. 400,000 people in US with MS revisited.

Happy Thursday,

The MS community has stopped saying that MS is an orphan disease.

The study said around 400,000 people in the US have MS.  My educated guess that it’s over 1 million.  The original number is based on a study done in 1975, over 40 years ago!  The NMSS is curently doing a new study that should be completed by the end of the summer.

With better diagnoses & more people admitting that they have MS, the number is going to be way up.  That means a whole bunch of Mighty Strong people!

Enjoy your day,

Ray

Use it or lose it!

Happy Sunday,

A friend of mine runs aquatic exercise classes for people with rumetoid arthritis.  She says that she sees people move after class move noticably better.  The same holds true for most chronic health conditions.  So even though it may be hard & painful to move, you need to do something every day.

Enjoy your day,

Ray

Early Interention & treatment

Happy Friday,

All of the information in recent years talks about getting a diagnosis & treatment plan ASAP.  Many people experience symptoms way before they a definative diagnosis of MS so the faster you assemble YOUR healthcare team, the less time MS can progress untreated.

Be your own advocated & push for answers!

Enjoy your day,

Ray

Possible role of diet in MS

Happy Wednesday,

Much of the researching going on is focused on the microbiomes in the gut of people with MS.  More studies focused on diet to reduce iflammation are being done now.  This seems to put more importance  on a healthy diet for us MSers.

Enjoy you day,

Ray

Never feel less than because you have MS

Happy Tuesday,

I have MS & give no apololgies for it.  No, I cannot do a lot of what I used to, but I just adapt.  I cannot ride a bicycle, but I ride a Ti-trike now.  The list goes on.  Never, ever feel that you are less of a person.  You are not!

I let the world know that I have MS.  My car has MS-GO in huge letters across it.  I am approached daily by people asking about it.

I did nothing to deserve this so I embrace it.  My goal is to let the world know that even with the limitations of MS, you can still live a happy life.

Enjoy your day,

Ray

Life is Good!

Happy Monday,

Mindset seems to be the biggest factor in how we deal with having MS.  My Sirius radio is preset to the comedy stations because I always want to laugh & stay in a good mood.

Having MS is always going to be a challenge, but MS can stand for: this Majorly Sucks or Made Strong.  The choice is up to you!

Even on a bad day when you feel run over by a truck, you can find something good to make you smile or laugh.  It can be a phone call from your child, friend or relative.  Put them on notice that you need that call to brighten up your day.  You’ll find that you will look forward to their call, you can brighten up their day too.

Enjoy your day,

Ray

Always be Safe

Happy Sunday,

Yesterday, I was supposed to ride in the Cape Cod BikeMS event.  It was raining with torrential downpours so I opted to volunteer for my Team Velox Rota instead.  Reports of 6 inch deep puddles (not good for a lower recumbent Ti-Trike), crashes & miserable conditions with poor visability showed my concern for my safety was correct.  I will do the Minuteman BikeMS on July 15th instead.

Having MS is challenging enough without getting injured.  Whatever you do, BE SAFE!!!!

Enjoy Your Day,

Ray

Create a Plan to deal with your MS

Happy Wednesday,

You need to take control of your MS.  This involves YOU creating a plan which you have to communicate to your family, healthcare team, close friends & anyone else close to you.  Yes MS has unbelievable challenges, but MS means you were Made Strong so YOU need to create the plan that makes your life the best it can be.

Enjoy Your Day,

Ray